Category Archives: work

My amazing journey

  I’ve been on one amazing journey of self-discovery, but with a disastrous catalyst after suffering from a near fatal rhabdomyolysis injury in my work as a hospital porter for the “Northern Health Social Care Trust” after being given some … Continue reading

Posted in life, McArdle's disease, work | Tagged , , , , , , , , | Leave a comment

An introduction to McArdle’s disease

Dr Ros Quinlivan talks about the symptoms, diagnosis and management of the very rare muscle disorder McArdle Disease (also known as myophosphorylase deficiency or Glycogen Storage Disease Type 5). Filmed in 2010 by CLIMB (Children Living with Inherited Metabolic Disease), … Continue reading

Posted in cycling, McArdle's disease, pain, Uncategorized, walking, work | Tagged , , , , , | Leave a comment